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When a child is diagnosed with a rare and difficult disease, there is so much chaos and stress. The care that they are given in the hospital and the attitude and optimism of their family and support network are crucial. My guest today, Nell C., was diagnosed with a rare condition at the age of 9. She emerged from that very scary experience and is well and thriving now, with her disease in remission. She wrote a book during the early days of the pandemic called My Hospital Story, which is shared with patients and families, as well as medical students. Nell is a rare disease advocate and a beacon of light and kindness for children and families going through health challenges.
You can purchase My Hospital Story on Amazon and follow @myhospitalstory
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